Anne McDonald 11.1.1961 – 22.10.2010

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Thanks to anne and this foundation for providing inspiration and care for others. My deepest condolences for anne's family and friends.

alex @ http://www.screenprintingdog.com

My condelences to family and friends who knew Anne.

Alex @ http://www.screenprintingdog.com

Anne and Rosemary were my closest friends and didn't even know me. My son was diagnosed with CP at the age of 1 year and was labeled straight away as being a "neuro baby" with the assumption that he was "severely mentally retarded" and wouldn't even know who I was. I am a music teacher and told the neurologist that he was wrong and that I knew that his intelligence was completely normal and was the one who realised that his physical development was delayed and that he was having partial seizures that the doctors had missed. From that moment on I found that life was going to be a fight just to get my son's basic human right of being treated like a normal human being recognised. I had seen Annie's Coming Out as a teen and bought the book online. Everything I read was happening to me and my son - in this day and age! We spent 3 months of hell being tormented by a neurologist who tried to demean us in every way he could. The psychologists who were supposed to recommend a school for my son gave him a standardised test full of puzzles, stating that, "It was not fair if my child had a "special tesat" just for him. He had to be compared to every other child", even though it wasn't fair that every other child had fine and gross motor skills. This was supposed to be an advocate for disabled people! I paid for a second assesment which was then ignored by the department of education who insisted that my son be put in a school for intellectual disabilities. I refused and fought the department. After I submitted videos of his alternative communication they placed him in a physical disability unit for kids with normal intelligence but told the teacher that I was wrong and had "pushed". Like Annie, my son resented being tested constantly and having to prove himself over and over again. No 6 uyear old should have to. I provided the school with switches he could use at home, a touch screen computer, but still the teacher reported that she could see no intelligence, even though he spells sentences with correct grammar at home with me, and was totally up to a kindergartener's academic level, if not better. Upon receiving a totally demeaning report that questioned his ability to even create "cause and response" reactions I asked my son what he wanted to do. Using what little verbal language he can manage he said to me, "Teach ya!" I now home-school him and he is going greast guns. He has devoured all of the roald Dahl books, Enid Blyton, and many classic children's literature. He has a funny little quirky sense of humour and we have a lot of laughs together. He is learning according to the curriculum and is doing very well.

Anne fought a great fight and today there are some fantastic people who are working with kids with severe disabilities but there are still many, many children falling through the cracks and there are still egotistical people in positions of authority who make decisions about these kids which have devastating consequences. The fight for just recognition and basic human rights - your fight, Anne and Rosemary -, continues today, unfortunately, but there are many more allies than adversaries. God bless you both. I cried for you and for myself and my son when I read your book. It was all too familiar but it gave me strength, hope and the will to follow the path that was right for my son.

 Communication Rights Australia has established the Anne McDonald Award to be presented annually to a person who has made an outstanding contribution to the advancement of rights for people who have little or no speech.  The 2010 award was presented posthumously to Anne at the CRA Annual General Meeting on November 15th.

''Annie's Coming Out ' hit the bookshops when my son John was two. The journey with him up until this point had been bleak and lacking in hope. His diagnosis of profound spastic quadralegia coloured our days. The book transformed our lives from the moment of first reading. It literally reversed the dark state we had been living in. All that seemed negative became positive and stayed that way until John passed away suddenly when he was 20. John learned to speak using assisted communication when he was 12. His first words to the world were 'Head not small" - don't judge me & my intelligence by the size of my body!!! Without Anne's couragous "coming out ", I shudder to think of what his life (& ours) would have been like.  It is doubtless that Anne's legacy will live on. Thankyou for being just who you were.

Sue Chambers, mother of the late John Bottomley.

I am so saddened to hear of Annies death. I met Annie very recently on a short flight that all 3 of you were on. I was one of the flight attendants on the flight, and I had little contact with you, other than to bid you farewell in the aerobridge, while we were waiting for Annies chair to be delivered. I will never forget the beautiful smile that she gave me after I wished her a great afternoon. What a wonderful lady.

Meg.(QF flight attendant).